WORLD RARE DISEASE DAY 2026 - PEDIATRIC AND PRIMARY LYMPHEDEMA – Children with Lymphedema - Organic Lymphatic Vascular Disease - Lymphostatic Elephantiasis - Spanish Lymphedema Associations - FEDEAL - Lymphedema Federation (Spain)

 

On Rare Disease Day, we remember that Primary Lymphedema is a rare or uncommon disease.

For many people, it is unknown why their lymphatic system did not develop properly from birth, which creates uncertainty and delays diagnosis.

That is why research is essential: to better understand its origin, improve diagnosis and advance for more appropriate care. Researching today means caring for tomorrow.

WHO WE ARE: LIST OF THE SPANISH LYMPHEDEMA ASSOCIATIONS

FEDEAL - THE LYMPHEDEMA AND LIPEDEMA FEDERATION (SPAIN)