lunes, 1 de abril de 2019

WHY IS ELEPHANTIASIS A FORGOTTEN AND NEGLECTED DISEASE – Pediatric and Primary Lymphedema - Secondary Lymphaedema - Lymphatic Filariasis and Podoconiosis - Rare Disease

Neglected diseases like Lymphedema stand in stark contrast to other chronic diseases like diabetes, which receive the life-long drug treatments they need. Severe complications due to lack of access to therapy and compression garments, lead to more chances of lymphedema progressing to cellulitis, and life-threatening complications such as lymphangiosarcoma or sepsis.
Across the world, people suffer from neglected diseases, conditions that prevail in many countries lacking good health care services, and medical resources. Diseases like Lymphedema typically do not kill immediately, but instead, it slowly becomes severe and disabling, leading to terrible suffering, creating losses of capital, worker productivity, and economic growth. 

Advanced lymphedema (lymphatic elephantiasis), is characterized by fibrosis and fatty induration of the tissues, which become much more difficult to reduce than in the early stages, where the swelling is more characteristically due to protein-rich fluid. So to reduce the incidence of "Stage Elephantiasis", more intervention is required at an earlier stage, much more than is currently indicated by some international organizations. Read more information on why the world is not treating a treatable disease like Lymphedema HERE

With regard to filarial lymphedema (Lymphatic Filariasis), it is very important that at the present moment and by means of drugs, there is a goal and campaign of eliminating filariasis, to prevent the next generations of people from being infected. But there should also be a goal and campaigns, for the treatment of the present generations, who are already affected and suffering, from the consequent established lymphatic edema. The same happens with lymphedema due to Podoconiosis (lymphatic podoconiosis), which also needs compression treatment and garments, in order to control its progression. 

Lymphatic edema without treatment or inadequately treated is more likely to develop very serious or even lethal complications such as erysipelas, adenolymphangitis, dermatolymphangioadenitis - DLA (cellulitis), necrotizing fasciitis, septicemia (sepsis), lymphangiosarcoma, etc. Elephantiasis whatever its cause or setting will never be eradicated from the world, whilst there are still people that don't have access to correct specialized treatment options for lymphedema. Read more information on what is the best treatment for Lymphedema HERE

Lymphedema is universally recognized as a neglected and severely debilitating disease, even though it already has effective treatments. In spite of this, many national health systems, even in modern and industrialized countries, allocate little or nothing to treating and preventing Lymphedema, in contrast to the full coverage given to other chronic diseases. Read more about the new LOW-COST modified lymphedema treatment options HERE

Primary and Secondary lymphedema collectively, affect millions of people across the world, most in the poorest areas of the poorest countries. All lymphedema whatever the cause and setting, can drift towards severe deformity, leading to increased disability in men, women, and children of all ages. Furthermore, inflammation and infections in young people, lead to absences from school, reduced future quality of life, and labor productivity. 

However, lymphedema can be successfully treated, what’s more, preventing its progression and complications in the first place is completely achievable through increased awareness, and early-stage preventive compression treatment programs. Read more about which country has the best public healthcare coverage of lymphedema HERE.

Without drastic increases in funding and medical, public, and political awareness, the plight of people affected by lymphedema is unlikely to budge anytime soon.

The worst situation for access to treatment is for the low-income countries, where national health systems and policies are doing little to nothing about it. Conversely, some global health experts estimate that for every dollar spent on neglected disease control, we get back over $50 in increased productivity. By increasing awareness and funding of treatments for neglected diseases, the world economies will be making one of the best global investments possible. Read more about what is the current management perspective and situation of Lymphatic Filariasis and Podoconiosis HERE.

CLICK TO SEE A VIDEO OF THE BEST NON-SURGICAL TREATMENT OPTION FOR ELEPHANTIASIS (STAGE III-LYMPHOEDEMA):


REFERENCES
(Pinch on the texts to read the following Research Articles)

SCIENTIFIC SOCIETIES

DIAGNOSE AND TREATMENT
INFECTIONS








  • WHAT KIND OF DOCTOR TREATS LYMPHEDEMA/LYMPHOEDEMA - WHICH MEDICAL SPECIALITIES ARE RELATED TO LYMPHEDEMA












LYMPHEDEMA INCIDENCE 
AND PREVALENCE
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