miércoles, 28 de septiembre de 2022

THE SPANISH CONFEDERATION OF PEOPLE WITH PHYSICAL AND ORGANIC DISABILITIES (COCEMFE) - Awareness Campaign about Organic Disability - Primary Lymphedema - Secondary Lymphedema - Diseases of the Circulatory System


COCEMFE launches a campaign to raise awareness of Organic Disability

"It's our turn to be in sight"

  • Feeling invisible in the waiting room, on the way to work, at school, or in their free time is something that thousands of people with organic disabilities experience on a daily basis, conditioning their participation in society.

  • The Galician Association of Lymphoedema, Lipedema, and Chronic Venous Insufficiency (AGL) and the COCEMFE Associative Movement, advocate for the social and official recognition of organic disability as a necessary step for social inclusion and the full guarantee of rights.

  • This campaign continues and consolidates another action carried out by COCEMFE and its Associative Movement, with the publication of the White Paper on organic disability in April this year.

The Lymphedema, Lipedema, and Chronic Venous Insufficiency Galician Association of Galicia (AGL), together with the Spanish Confederation of People with Physical and Organic Disabilities (COCEMFE) and its Associative Movement have launched this Wednesday the campaign 'Invisibles' under the slogan " It's our turn to be in sight" and with the aim of making organic disability visible and denouncing the different discriminations that people with this type of disability have to face in their daily lives.

"In many cases, organic disability cannot be perceived at first glance ", explains the president of the national COCEMFE, Mr. Anxo Queiruga, who emphasizes the importance of "people with disabilities being guaranteed the exercise of their rights and achieving full inclusion and active participation in society". In particular, this lack of knowledge and understanding has a direct impact on the health and social health care that people with organic disabilities need, as well as on access to or maintenance of their jobs or educational and training opportunities. In addition, it also has an impact on leisure and sports options, interpersonal relationships, or access to social protection measures, such as the disability recognition certificate. "Invisibility at a social and official level, on behalf of the administrations, generates systematic exclusion", concludes Mr. Queiruga.

For all the reasons above, the Galician Association of Lymphoedema, Lipedema, and Chronic Venous Insufficiency (AGL), together with COCEMFE and its Associative Movement, defends that the action and commitment of the administrations and society as a whole are vital to eliminating these barriers: improve access to social and health services, achieve equitable coverage and proximity of support and accessible and inclusive spaces. To accomplish this, the 'Invisibles' campaign aims to raise awareness of the reality of people with organic disabilities and in particular of women and girls with disabilities, who have to face inter-sectional discrimination that prevents them from living their lives on equal terms.

This campaign continues and strengthens another action carried out by COCEMFE and its Associative Movement, with the publication of the White Paper on organic disability in April this year. These initiatives are funded through grants for the implementation of activities of general interest considered to be of social interest from the 0.7 calls of the Ministry of Social Rights and the 2030 Agenda.

Organic disability stems from a loss of functionality in one or more body systems (organs or systemic failures), usually caused by the development of chronic health conditions, which result in impairments that are mostly not directly perceptible. The internal, often unstable, and unpredictable course of such conditions, such as pain, flare-ups, or states of fatigue, are often not recognized or understood as part of the lived experience of people with disabilities. Neither is the constant attention to treatment and daily care that permanently interferes with and conditions life projects.


Lymphedema is a serious chronic and progressive disease due to an organic disability. The clinical treatment of lymphedema is neither a cosmetic nor an aesthetic treatment. The treatment of lymphedema is to control its progression and alleviate the symptoms related to dysfunction of the lymphatic circulatory system. To prevent and avoid serious complications associated with treatment, such as the possible displacement of edema to previously unaffected areas when compression therapy is applied for volume reduction, patients should use highly specialized and experienced therapists. 

Professional qualification and instruction delivered remotely online are not the same as live hands-on practical instruction in the clinical training and certification of lymphedema therapists, similar to all other rehabilitation, medical, and surgical training programs, and especially for developing the necessary manual skills to treat a disease as complex as lymphedema. 

Patients should also take special care when choosing a "Multidisciplinary Center of Reference for Lymphedema", as not all countries and centers provide the same treatment options. The best choice is a center of reference that provides “Complete Decongestive Therapy (CDT)”, which is recognized as the “Gold Standard” treatment for lymphedema.

  • Read more about what is the best treatment option for Lymphedema HERE.
  • Read about what are the principal functions of Manual Lymphatic Drainage HERE.
  • Read about what are the main differences between the two principal lymphedema treatment protocols HERE. 
  • Read about what are the strategies for the implementation of low-cost treatment options for Lymphedema HERE.


(Click on the texts to read the research articles)











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