sábado, 15 de enero de 2022

WORLD NEGLECTED DISEASE DAY 2022 - Lymphostatic Elephantiasis – Lymphatic Filariasis - Podoconiosis – Lymphatic Vascular Disease – Pediatric and Primary Lymphedema – Rare Disease – Secondary Lymphedema – Awareness Campaign - Patient Association (Spain)

The existence of international days is to raise public awareness on issues of concern, so as to mobilize political will and resources to address problems, the specific problems that need urgent attention. Today January 30, people all over the world join to raise awareness regarding neglected diseases and call on health systems to invest in proper, effective, and safe treatment options for all, and to leave no one behind.

The slogan “LEAVE NO ONE BEHIND” regarding health issues related to Lymphedema, means that Health Systems must invest in proper, effective, and safe health care for all, whatever their cause or setting. The United Nations General Assembly endorsed a resolution On 12 December 2012, urging countries to aim towards the goal that everyone, everywhere, should have access to quality health care, and proclaimed 12 December as Universal Health Coverage Day (UHC Day) by resolution 72/138. Millions of people all over the world with Lymphedema are still waiting for proper and effective health care, and many of them are already in severe stages.

Regarding Elephantiasis, also known as late Stage III Lymphedema, can be due to Pediatric and Primary Lymphedema, or Secondary Lymphedema related to surgical interventions, chronic venous insufficiency, trauma, filariasis, podoconiosis, etc. The global situation regarding elephantiasis (Lymphedema Stage III) is far from new—and the reality of millions of people is that of suffering neglect regarding their Humans Rights to access propper effective treatment. Some Lymphedema and health-related organizations try to mend the scale of the problem, developing alternative low-cost ineffective treatment options, that various health systems around the world have embraced as “THE FINAL SOLUTION” for lymphedema/elephantiasis. Read more information on what country has the best treatment for lymphedema HERE.

Lymphedema Stage III (elephantiasis) in the majority of cases is the result of no treatment or undertreatment of lymphatic edema. Failure to treat and control the initial swelling leads later to recurrent dermatolymphangioadenitis (infectious cellulitis - DLA), progressive skin changes, external physical differences (deformity/disfigurement), and disability. Permanent swelling also affects people's lives in many other ways, such as the fitting of clothing and footwear, impair mobility, or even sexual function. The damage is not only physical but can also lead to serious economic, social and interpersonal consequences. Due to a combination of factors such as under-treatment, disability, external stigma, people with severe Lymphedema may lose their jobs, be rejected from their communities, or have difficulty starting or maintaining social relationships. The discrimination and isolation resulting from these factors can, in turn, lead to negative psychological and psychosocial outcomes. Read more information about psychological aspects surrounding non-treatment of lymphedema HERE.

Elephantiasis (Lymphedema Stage III) can be prevented and treated in the majority of cases with Complete Decongestive Therapy (CDT), which helps stop the progression of the disease. Treating the underlying condition (Lymphedema) in its early stages, with proper and effective compression therapy, prevents progression of the disease towards its severe late-stage called elephantiasis. Wearable compression garments are the most effective daily treatment and are considered the cornerstone of Lymphedema management. Even though it may seem otherwise, stage elephantiasis is not something rare that can only be found in poor or underdeveloped countries but can also be found in high-tech wealthy nations. Scientific studies highlight the importance and implications of compression therapy in controlling the progression of Lymphoedema. Read more information on what is the best treatment option for Lymphedema HERE.

Health systems must be equitable, resilient, and capable of meeting people's needs, and everyone, everywhere, deserves access to quality health services. World Neglected Disease Day is observed annually on January 30 with the aim to ensure people around the world can get the quality health services they need.

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