¿SABES QUÉ ES UNA ENFERMEDAD ORGÁNICA Y QUÉ SON DISCAPACIDADES ORGÁNICAS Y FÍSICAS?
ENFERMEDAD ORGANICA
Enfermedad Orgánica es aquella en la que se produce un cambio medible en los tejidos, órganos o sistemas corporales. Se refiere a cualquier trastorno causado por una disfunción física de una Estructura Orgánica. Distingue síntomas y síndromes (grupo de síntomas) que pueden explicarse por cambios biológicos diagnosticables, y abarca una amplia categoría de afecciones que incluyen enfermedades infecciosas, inflamatorias, metabólicas, neurológicas, autoinmunes, etc.
Para el diagnóstico de una enfermedad orgánica, habrá pruebas y procedimientos que puedan detectar o medir los cambios biológicos y anatómicos que conducen a la enfermedad o disfunción, que pueden implicar análisis de sangre, estudios de imagen, instrumental médico o procedimientos quirúrgicos.
DEFICIENCIA ORGÁNICA
Deficiencia o Discapacidad Orgánica es la pérdida de funcionalidad de un Sistema Corporal, incluidos los órganos internos o los procesos fisiológicos, ya sea congénita o adquirida. El Linfedema, Lipedema y la Insuficiencia Venosa Crónica están causados por una deficiencia orgánica (Disfunción Orgánica), que pueden asimismo causar discapacidad física. Lea sobre discapacidad en linfedema AQUÍ.
Muchas personas que tienen discapacidad orgánica sufren incomprensión y tienen problemas a nivel familiar, social y laboral. La falta de reconocimiento oficial por parte de las Administraciones Públicas, supone un obstáculo en la vida diaria e influye en su calidad de vida.
DISCAPACIDAD FÍSICA
Discapacidad Física es un trastorno fisiológico o pérdida anatómica que afecta a uno o más sistemas corporales y que limita sustancialmente el funcionamiento físico de una persona. Puede derivar de lesiones, enfermedades o afecciones congénitas diagnosticadas médicamente, que interfieren y tienen un efecto negativo "sustancial" y prolongado en la capacidad de una persona para realizar las actividades básicas de la vida diaria. Lea sobre limitaciones funcionales en linfedema AQUÍ.
¿Y SABES QUÉ ES UNA DISCAPACIDAD INVISIBLES?
Discapacidad Invisible, o Discapacidad Oculta, es un término genérico que abarca todo un abanico de ciertos tipos de afecciones médicas y de nacimiento crónicas, incluidas las deficiencias orgánicas, que no son visibles o aparentes a primera vista. Sus signos y síntomas sólo son visibles en sus estadios más avanzados, pero que pueden limitar o dificultar sustancialmente los movimientos, los sentidos o las actividades cotidianas de una persona.
Por lo general, ver a una persona en silla de ruedas, usando un audífono o portando un bastón blanco, nos indica que una persona puede tener una discapacidad, pero ¿Qué ocurre con las personas que sufren discapacidades invisibles, que parecen sanas y no usan dispositivos de asistencia, y sus condiciones médicas les impiden realizar sus actividades diarias?
Algunas personas que tienen una discapacidad física invisible siguen realizando sus actividades diarias, pero otras, debido a los síntomas y complicaciones de la condición, tienen dificultades para llevar a cabo las actividades básicas de la vida diaria, además de presentar dificultades a nivel laboral. Es muy difícil que la sociedad comprenda este tipo de discapacidad, cuando no se tiene información sobre ella.
Las discapacidades invisibles incluyen enfermedades crónicas como el Linfedema, el Lipedema, y la Insuficiencia Venosa Crónica.
REFERENCIAS
ARTÍCULOS CIENTÍFICOS
(Pincha sobre los textos para leér los artículos científicos)
SOCIEDADES CIENTÍFICAS
FISIOPATOLOGÍA
- lymphedema.
- Biology of Lymphedema
- Lymph vessels: the forgotten second circulation in health and disease
- Lymphatic Vessel Network Structure and Physiology
- Lymphatic System Flows
- Organ-specific lymphatic vasculature: From development to pathophysiology.
- The lymphatic vascular system: much more than just a sewer.
- The unresolved pathophysiology of lymphedema.
- Lymphedema: A Practical Approach and Clinical Update.
- Coagulation in Lymphatic System.
- Regulation of immune function by the lymphatic system in lymphedema.
- Oxidative stress in chronic lymphoedema.
- Regulatory T Cells Mediate Local Immunosuppression in Lymphedema.
- Hemostatic properties of the lymph: relationships with occlusion and thrombosis.
- Secondary lymphedema: Pathogenesis
- Gastrointestinal Lymphatics in Health and Disease
- Intestinal lymphangiectasia in adults
- Role of the lymphatic vasculature in cardiovascular medicine
- The lymphatic vasculature in disease
- Lymphoscintigraphic abnormalities in the contralateral lower limbs of patients with unilateral lymphedema.
- The Prevalence of Lower Limb and Genital Lymphedema after Prostate Cancer Treatment: A Systematic Review
- Peripheral Edema
- The lymphatic system and the skin. Classification, clinical aspects, and histology.
- Lymphedema and cutaneous diseases.
- Lymphedema and subclinical lymphostasis (microlymphedema) facilitate cutaneous infection, inflammatory dermatoses, and neoplasia: A locus minoris resistentiae.
- Serum Immune Proteins in Limb Lymphedema Reflecting Tissue Processes Caused by Lymph Stasis and Chronic Dermato-lymphangio-adenitis (Cellulitis).
- Lymphatic Flow: A Potential Target in Sepsis.
- Infectious complications of lymphedema.
- Acute inflammatory exacerbations in lymphoedema.
- Inflammatory Manifestations of lymphedema.
- Cellulitis.
- Clinical features, microbiological epidemiology, and recommendations for the management of cellulitis in extremity lymphedema.
- Challenges of cellulitis in a lymphedematous extremity.
- Diagnosis and management of cellulitis.
- Cellulitis risk factors for patients with primary or secondary lymphedema.
- Oedema as a risk factor for multiple episodes of cellulitis/erysipelas of the lower leg.
- Prevention of dermatolymphangioadenitis by combined physiotherapy.
- Erysipelas: a common potentially dangerous infection.
- Malignant tumors as complications of lymphedema.
- Lymphedematous areas: Privileged sites for tumors, infections, and immune disorders.
- Lymphedema-related angiogenic tumors and other malignancies.
- Lymphedema: an immunologically vulnerable site for the development of neoplasms.
- Lymph stasis promotes tumor growth
- A retrospective analysis of Stewart-Treves syndrome in the context of chronic lymphedema.
- Stewart-Treves Syndrome
- Congenital lymphedema complicated by pain and psychological distress: case report
- Lymphatic Pain in Breast Cancer Survivors
- Does Manual Lymphatic Drainage Have Any Effect on Pain Threshold and Tolerance of Different Body Parts?
- Lymphedema therapy reduces the volume of edema and pain in patients with breast cancer
- Quality of life in patients with primary and secondary lymphedema in the community
TRATAMIENTO
- Treatment of limbs lymphedema.
- Nonoperative treatment of lymphedema.
- Lymphedema: From diagnosis to treatment.
- Lymphedema-clinical picture and therapy.
- Physiotherapeutic rehabilitation of lymphedema: state-of-the-art.
- Diagnosis and management of lymphatic vascular disease
- Effective treatment of lymphedema of the extremities.
- Lymphoscintigraphic aspects of the effects of manual lymphatic drainage.
- Intensive Treatment of Lower-Limb Lymphedema and Variations in Volume.
- Effectiveness and safety of Complete Decongestive Therapy of Phase I.
- Therapeutic Efficacy of Complex Decongestive Therapy in the Treatment of Elephantiasis of the Lower Extremities.
- Effects of Phase I complex decongestive physiotherapy on physical functions and depression levels in breast cancer-related lymph edema.
- Does lymphoedema bandaging reduce the risk of toe ulceration?
- Study of 700 referrals to a Lymphedema Program.
- Worldwide assessment of healthcare personnel dealing with lymphoedema.
- Földi M, Földi E. Földi’s textbook of lymphology for physicians and Lymphoedema therapists.
- Fluid Shifts Induced by Physical Therapy in Lower Limb Lymphedema Patients
- Visualization of Accessory Lymphatic Pathways, before and after Manual Drainage, in Secondary Upper Limb Lymphedema Using Indocyanine Green Lymphography
- The risk of genital edema after external pump compression for lower limb lymphedema.
- The management of genital lymphoedema
- The management of deep vein thrombosis in lymphoedema: a review.
- Lymphedema-associated comorbidities and treatment gap.
- A study of the advantages of elastic stockings for leg lymphedema.
- Indications for medical compression stockings in venous and lymphatic disorders: An evidence-based consensus statement.
- Medical compression stockings for chronic venous diseases and lymphedema: Scientific evidence and results of a patient survey on quality of care.
- Impact of Compression Therapy on Cellulitis (ICTOC) in adults with chronic edema: a randomized controlled trial protocol.
- Compression Therapy Is Cost-Saving in the Prevention of Lower Limb Recurrent Cellulitis in Patients with Chronic Edema.
- Occupational leg edema-use of compression stockings.
DISCAPACIDAD
- Disability and lymphedema.
- Lymphedema and employability.
- Worse and worse off: the impact of lymphedema on work and career after breast cancer
- Functioning in lymphedema from the patient's perspective using the International Classification of Functioning, Disability and Health (ICF).
- Unilateral upper extremity lymphedema deteriorates the postural stability in breast cancer survivors
- Postural Stability in Patients with Lower Limb Lymphedema
- Disability, psychological distress and quality of life in breast cancer survivors with arm lymphedema
DISFIGURACIÓN
- Adjusting to disfigurement: processes involved in dealing with being visibly different
- Quality of Life in Cancer Patients with Disfigurement due to Cancer and its Treatments
- Quality-of-life and body image impairments in patients with lymphedema
- Association of lower extremity lymphedema with pelvic floor functions, sleep quality, kinesiophobia, body image in patients with gynecological cancers
CALIDAD DE VIDA
- The impact of lower limb chronic oedema on patients' quality of life
- Quality of life in patients with primary and secondary lymphedema in the community
- Evaluating the effect of upper-body morbidity on quality of life following breast cancer treatment.
- Functionality and quality of life of patients with unilateral lymphedema of a lower limb: a cross-sectional study
- The effect of complete decongestive therapy on the quality of life of patients with peripheral lymphedema
IMPACTO PSYCHOSOCIAL
- Psychosocial Impact of Lymphedema.
- Associations between chronic disease, age, and physical and mental health status
- A network analysis of psychological flexibility, coping, and stigma in dermatology patients
- 'Abandoned by medicine'? A qualitative study of women's experiences with lymphoedema secondary to cancer, and the implications for care
- People are neglected, not diseases.
- Chronic edema/lymphoedema: under-recognized and under‐treated.
- Lymphatic Medicine: Paradoxically and unnecessarily ignored.
- Medical education: a deficiency or a disgrace.
LINFEDEMA PEDIÁTRICO
- NORD: Rare Disease Database - Lymphedema
- Medical management of lymphedema.
- Primary lymphedema in childhood.
- An approach to familiar lymphedema
- Pediatric Children Lymphedema
- Primary Lymphedema French National Diagnosis and Care Protocol (PNDS).
- Lymphatic filariasis: an infection of childhood.
- Lymphatic filariasis in children: clinical features, infection burdens and future prospects for elimination.
- Podoconiosis: Clinical spectrum and microscopic presentations.
- Podoconiosis: A Possible Cause of Lymphedema in Micronesia.
- A cross-sectional study to evaluate depression and quality of life among patients with lymphoedema due to podoconiosis, lymphatic filariasis, and leprosy.
- The impact of acute adenolymphangitis in podoconiosis on caregivers.
- Neglected tropical diseases and disability-what is the link?
- Locomotor disability in bancroftian filarial lymphoedema patients.
- Neglected patients with a neglected disease?
- Neglected tropical diseases and mental health: a perspective on comorbidity.
- People are neglected, not diseases.
- Addressing Inequity: Neglected Tropical Diseases and Human Rights.
- Neglected Tropical Diseases, Conflict, and the Right To Health.
- Peripheral Edema
- Phlebolymphedema
- Understanding Chronic Venous Disease: A Critical Overview of Its Pathophysiology and Medical Management
- Role of the lymphatic vasculature in cardiovascular medicine
- Communication between lymphatic and venous systems
- Phlebopathies and occupation
- Phlebopathies and workers
- Evidence of health risks associated with prolonged standing at work and intervention effectiveness
- Leg edema formation and venous blood flow velocity during a simulated long-haul flight
¿QUE DOCTOR O ESPECIALIDADES MÉDICAS DEBE DIAGNOSTICAR, TRATAR O ESTÁN RELACIONADAS CON LINFEDEMA?
¿CUALES SON LOS SÍGNOS, SÍNTOMAS Y COMPLICACIONES DEL LINFEDEMA?
¿CUAL ES LA PRINCIPAL FUNCIÓN DEL DRENAJE LINFÁTICO MANUAL?
¿CUALES SON LAS ESTRATEGIAS PARA DESACREDITAR EL DRENAJE LINFÁTICO MANUAL?
¿POR QUÉ LA MARIPOSA ES EL SÍMBOLO DE LINFEDEMA?
PRECAUCIÓN CON LAS BOMBAS DE PRESOTERAPIA
PULSERAS Y COLGANTES DE AVISO MÉDICO – INDICATIVOS DE ALERTA MÉDICA
CONSEJOS PARA VIAJES EN AUTO Y TREN
